Saturday morning things began to go downhill. Phillip and I were in Breckenridge on a ski vacation with a friend of ours. We arrived in town on Thursday and had a gorgeous day of skiing Friday. I felt great. I hadn’t skied in ten years, but things came back smoothly.…
Packing for Vacation with Chronic Illness
Packing for a vacation is always an involved process. You have to consider what the weather will be like, and what activities you have planned: fancy dinner or no fancy dinner? Then there is the space issue. Can you fit all of your shoes in just one piece of luggage?…
Living Without a Plan
Life is very up in the air for me and Phillip right now. Everything from where we will be in two months, to our careers, to my health, to our finances is unsettled. Normally this would really freak me out. I love, love, love to plan. I’ve been writing affirmations…
What is the average length of a doctor’s appointment in the United States?
Hint, it is longer than 3! Doctor’s appointments are important, especially when you are coping with a chronic health condition. These days they seem to be getting shorter and shorter. I’ve had a few that lasted barely over five minutes. The brevity of these appointments almost assures that you are…
The Zen of Procrastination
Yes, I procrastinate. At least a little bit every single day. I let the laundry pile up. I haven’t washed the windows in goodness knows how long. I’ve got a huge to-do list and nothing is getting done. Well, except for writing about nothing getting done. Procrastination is a flaw…
How to Not Freak Yourself Out with Medical Research
At 10PM I opened my internet browser. I guess I was bored. I remembered something my doctor had said and I wanted to investigate. We were discussing kidney disease research and diet. He mentioned that because my kidney issues came from a congenital disorder my case was unique and that…
I Am Not My Body
I am not my body I am not confined by my skin or defined by a diagnosis I am not a state of mind: tired, frustrated, lost I am not a thought, positive or negative, hopeful or worried, sure or confused I am not an emotion, not turbulent or calm…
The Guilt of Positive Thinking
Years ago, when I was first introduced to positive thinking, the philosophy was that anything in life could be controlled with a thought. Perfect health, wealth, romance, all of it was just one thought away. This is a very sexy notion. It made the rough stuff in life seem easier…
Stable…Holy Cannoli Stable!!!
Phillip and I were back for a checkup this week. I know better than this. I know that I should stay in the moment, say my affirmations and expect the best. But that’s the ideal and sometimes the ideal just isn’t where I am at on a particular day. I…